![]() Our aim was to explore the patterns of social media use for young people with IBD. However, this new generation of patients navigate the world in a different way, including frequent use of social media. Attention has been paid to more traditional tasks such as medication adherence and carrying insurance cards. Some reports indicate that patients with chronic health issues prefer asking health professionals for information about diagnosis, medications, or other specialists but turn to peers through social media for emotional support or practical advice for coping or treating “everyday” health issues.4 Other studies report that the Internet is used by a majority of patients to seek information about their own chronic health conditions, such as IBD.5 During the adolescent and emerging adult years, the large number of patients with IBD diagnosed in childhood6 will need to learn health-related tasks that are required for successful transition to an adult provider. This has led to increasing use of social media as a medical resource for patients with chronic illnesses over the last decade.1 Social media has been defined as any online venue that allows users to network and share information and includes social networking sites (ie, Instagram, Facebook, and Twitter) and content communities (ie, Pinterest and YouTube).2 In 2016, 78% of US Americans were reported to have a social media profile.3 Patients with chronic illness, including inflammatory bowel disease (IBD), do turn to Internet sources and social media for information. social media, adolescents, young adults, teens, inflammatory bowel disease, disease management INTRODUCTION Access to social media and the Internet has expanded, with 74% of United States households having Internet access according to the most recent census data. Targeted education and skill building may be helpful for this transitioning population. ![]() They prefer e-mail rather than oral communication between visits, and privacy seems to be less of a concern. Conclusions Adolescents and young adults with IBD are less likely than adults to use social media for health-related activities. Few patients used mobile applications to monitor symptoms (2%) or for medication reminders (9%), although there was professed interest. Patients’ preferred communication with provider was by e-mail (88%) compared with a phone call to the office (67%) or hospital website/patient portal (52%). A small number (16%) connected with other IBD patients. Almost all patients accessed the Internet daily, but only 17% reported looking up information about IBD “always” or “often.” Less than half (47%) turned to medical websites (WebMD or Crohn’s and Colitis Foundation) for information. The mean age of the cohort (SD) was 18 (2.9) years, 65% were male, and 82% had Crohn’s disease. Results Of 218 patients approached, there were 109 respondents. Methods An anonymous and voluntary survey was administered to IBD patients age 12 to 25 years at a single center over 4 months. Our aims were to explore how youth with inflammatory bowel disease (IBD) use social media for (1) disease information gathering, (2) provider communication, (3) sense of belonging to the IBD community, (4) self-expression around IBD, and (5) disease management/monitoring. ![]() For adults, these platforms have been shown to be a major source of health information. MD, Winnie Szeto, van der Bent, BSc, Annelotte MA, Carter R Petty, MD, Jason Reich, MSc, Francis Farraye, MD, MD, Laurie N Fishman,Ībstract Background Social media is commonly used among the adolescent and young adult population, including those with chronic diseases. Use of Social Media for Health-Related Tasks by Adolescents With Inflammatory Bowel Disease: A Step in the Pathway of Transition Use of Social Media for Health-Related Tasks by Adolescents With Inflammatory Bowel Disease: A.
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